Tag Archives: transferring

More on Autism

11 Apr

So I’ve mentioned before that both my case manager and the therapist wanted to have me evaluated to see if I fell on the Autistic Spectrum.  This was due to a variety of issues including my Sensory Processing Disorder, issues with eye contact, problems with socializing, and falling a lot.  With Kaiser’s evaluation system that took like 3 months to go through I was found not to have an ASD because I did not present symptoms as an infant, though I met enough criteria currently and had since a child.  This has been upsetting me a lot.  Transferring to UC Davis, I still haven’t made any connections and while I don’t need to have a lot of friends and to be honest am not interested in having a lot of friends, I would like to have one or two.  I never seem to say the right thing and I can’t figure out people.  My case manager went to a training about a week ago now and she said a lot of females on the spectrum are misdiagnosed with Borderline Personality Disorder or Bipolar because Autism is about not being able to control your emotions.  I have both.  She said if it’s any something she thinks I’m somewhere on the spectrum and that they need to train Kaiser doctors better.

I know several autistic young adults.  I found this on the internet the other day:

What do you think the most common cause of premature death is among adults of typical or high intelligence with autism spectrum disorders? It’s suicide.

A large study was recently published in the British Journal of Psychiatry that examined the risk of death among the 27,122 persons diagnosed with autism spectrum disorders in Sweden when compared to age-matched controls. One significant finding from the study is that on average, persons with autism die sixteen years sooner than would be anticipated.  The finding we’ll examine more closely is that adults with autism and no intellectual disability are over nine times more likely to commit suicide when compared to their age-matched peers. Unlike the general population, in which men are significantly more likely to commit suicide than women, women with autism were at higher risk of suicide in this study than men.

Last month’s study isn’t the only signal that persons with autism are especially vulnerable to suicide.

  • study of 10-14 year-olds with autism reported that 70% of kids with autism also had at least one mental health disorder such as anxiety, ADHD or depression, and 41% had at least two comorbid mental health disorders. Of those with ADHD, 84% received a second comorbid diagnosis.
  • Kids with autism were 28 times more likely to experience suicidal ideation than age-matched peers without autism in this study.
  • In a study of 374 adults with Asperger’s Disorder, 66% of 367 respondents self-reported suicidal ideation, 127 (35%) of 365 respondents self-reported plans or attempts at suicide, and 116 (31%) of 368 respondents self-reported depression. Adults with Asperger’s syndrome were nearly ten times as likely to report lifetime experience of suicidal ideation than individuals from a general UK population sample, and more prone to suicidal ideation than people with one, two, or more medical illnesses, or people with psychotic illness.

Why might suicide represent such an enormous problem among high-functioning persons with autism spectrum disorders?

They’re more likely to experience social isolation and lack social supports. In the fall of 2014, we shared this anonymous post from a college student describing her experience of trying to attend church as a person with autism. Imagine how the challenges she describes would impact her day to day life outside of church.

High-functioning kids with autism are significantly more likely to become victims of bullying when compared to their peers with autism and intellectual disability. It’s become socially inappropriate to ridicule persons with an obvious disability…less so when the disability isn’t so obvious.

They’re more likely to experience difficulties with executive functioning that may translate into a greater risk of acting upon suicidal impulses, more difficulty employing effective problem-solving skills and more difficulty self-regulating emotions. Learn more here about the challenges persons face with executive functioning challenges.

Their propensity to become very fixated on specific thoughts or ideas may intensify suicidal thoughts, or result in more difficulty letting go of feelings of hopelessness when they occur.

http://www.keyministry.org/church4everychild/2017/4/4/the-suicide-epidemic-among-high-functioning-persons-with-autism

PS I’ve been more suicidal with less friendship and more lonely lately.

The problems lack of memory brings

5 Mar

Today while driving back to my apartment from home, I was crying which is a pretty normal occurrence.  It’s a 40 minute drive, I’m alone and I don’t have to worry about anyone finding me or asking me questions.  As I was crying and thinking about my time here at UC Davis, my transition, and my lack of friends I was wondering if this was what it was like at the private christian college.  Of course I don’t remember!

With everything going on, I’m getting back suicidal again.  I think it might help if I could remember if this is what it was like before, because if it was- I either adjusted, quit, or got through it; because hey I’m here.

Again mostly annoyed by the lack of friends.  Which makes the thought of dying easier when there is no one to live for.  I got the few standard people but they are most distant with my school duties and their current life duties.

Apparently again can’t be ASD because I care about having a friend or two.  Fucking ridiculous.  And these people are suppose to be professionals.  People annoy me to most an extent and I’m picky as hell about friends, but I want a couple.

Abandonment sneaking back in

22 Aug

Honestly, I’m surprised it waited until now.  It’ll less than a month till I’ll be moving out and officially starting UC Davis in the Fall Quarter which means that it is also less than a month until 20 something’s friend will be moving to San Diego.  It’s starting to feel real, I’m starting to get sad, and I’m beginning to get overwhelmed.  It started about a week and a half ago when he went there for a week long program at UCSD.  One of the first days I just kinda lost it, and in front of my mom of all people.  And for some reason I was seeking sympathy from her, talking about barking up the wrong tree and I should know better.  I guess I was desperate.  I tried my DBT skills all week.  I FB messaged him a couple times but he was so busy with workshops and not and I didn’t want to be that person.  After he got back I got a sweet postcard, I wish I had gotten it while he was gone, but since I was wrapped up in emotion mind a couple times I’m not sure it would have helped.  I tried making plans with other friends, but my other blogger friends with BPD probably know how it is they are not 20 somethings friend; and it isn’t the same.  It won’t be the same.  It’s not the end of the world.  But I’m losing my best friend.  I have trouble making friends because of all my other issues and there won’t be anyone else in the world like him.

Excited new opportunities

27 Jul

I feel like I’m beginning to start a new life coming up soon when I transfer to UC Davis.  Just today I got e-mailed my course syllabus for my summer session class that starts Monday.  Yesterday I selected my student housing apartment and found out who would likely be my housemates.  I’m looking into other therapists to see for the gender dysphoria and other blogs to follow, of people who might be like me.  I picked up my child and adolescent psych records yesterday and will bring them to my counseling appointment tomorrow.  I need to talk to someone about my social functioning and how to deal with that and transitioning at Davis especially since apparently I don’t have ASD, I’m suppose to broach the gender identity topic with the therapist but she will get the ASD evaluation, either way I don’t see her until August 28th.  I will see if my case manager can read the ASD eval and maybe that will help things; I know she doesn’t want to or doesn’t feel qualified to work on the gender identity stuff.  i wonder if the therapist will just refer to another person within Kaiser.  Sometimes A lot of times my health insurance is a joke.

Gender Identity

24 Jul

I’m thinking more about my gender identity issues and where I want to be in 5 years or more so what I want to look like and how I want to feel about my body and mind.  Yesterday I researched top surgery, initially I was just thinking about getting a double mastectomy because I don’t like my breasts.  But as I think more and as I explore more I am considering top surgery so if I wan’t to identify more along the male lines I will have a more male looking upper body than just no breasts.

It was interesting that there were two types of surgery depending on how big your breasts are, since mine are C or bigger I would have a certain surgery.  I also would need to lose some weight so I have started to exercise and watch what I am eating.

One of the things I’m not looking forward to is that this is something I will need to address with the therapist and I’m not that comfortable with her.  Also I only see her once a month and I’m not sure about containing the dysphoria in-between appointments.  I also worry working on it will destabilize me and cause me to have to quit UC Davis.

 

All over the place

30 Jun

My mood has kinda been all over the place lately and mostly reliant on other people or me level of boredom.  Which isn’t healthy.  Sometimes it’s not.  I’m kinda excited about starting summer school and the whole transition of moving out and transferring to UC Davis, but I try not to think about it to much because I don’t want to get overwhelmed.  Since I’m only taking one class this summer and it doesn’t start till August 1st, I was thinking about delving into some help type things I’ve been avoiding like maybe looking into talking about gender identity (though it isn’t bothering me too much right now) or looking into ACOA groups, again it’s not bothering me too much.  I guess things don’t have to be really difficult at the time to bother you, if you still know they are an issue.  I know when school starts up, it will be too crazy.  I’m interested to see what this ASD eval has to say.  I was talking to 20 something friend today about relationships and meeting people and how I don’t have skills and sometimes no interest and he was talking about like an ASD group or something.  I don’t know if that exists and technically I don’t know if I have a diagnosis or will.  I know in the past from being friends with others with BPD it was a mistake and caused a lot of drama.  I know I was trying not to look up info on ASD until I heard from the doctors, but I wanted to know what the new DSM5 had to say about it as I heard they were doing away with Aspergers and that’s most likely what I think I would be diagnosed with.  I was not surprised to find I met most the criteria but then that it said it had to be ruled out for schizophrenia, so I wonder if they will roll all the “social functioning” issues I have under the schizo in schizoaffective and then have the sensory issues in the Sensory Processing Disorder and just kind of ignore the other weird quirks like delayed sexuality, poor motor skills, my fixations, routines and problems with change.  So many questions and probably few will get answered.

ASD Eval Part 2

14 Jun

Today I had my second part of my Autistic Spectrum Disorder Evaluation.  It was just one long questionnaire with 344 questions!  It almost seemed like a general psych test because there were questions about anger, drugs, alcohol, anxiety, depression, all kinds of stuff.  I told him at the end that I had some other diagnoses and some questions were familiar.  My appointment to go over the results of all the testing together are July 12th, which seems like a long time away.  I’m kinda on board with 20 somethings friend now and feel like I already have a diagnosis but lets see what Kaiser has to say, although it took them forever to figure out the Schizoaffective diagnosis and even longer to find a good medication combination. And I asked the guy what happens and he says he pretty much sends the results to the therapist, so I guess that’s it?  I’d be more comfortable asking my case manager about it and using her as an intermediary and I know she can read my file and all the notes too.

The Orlando shooting set off the voices, and that was the post the other day.  Luckily it was less than a few hours of psychosis stopped by some extra Latuda I took.  I tried to stay away from the news of it on Sunday but it was everywhere, plus the Latuda makes me drowsy.  After 3pm the psychosis was gone.  I always worry when it onsets again, that this will be the time it doesn’t go away, that this will be the time that I lose control.  In this case… that this will be a time I need to be hospitalized and I’ll miss my orientation for transferring and it will screw everything up.

People think I worry too much or to take it one step at a time.  But I live on the brink of insanity.  I need to be very vigilant.

A Whole Lot of Stuff

8 May

Yesterday was the NAMI Walk here is a picture of my 2016 Team:

NAMI 2016 Team

Biggest team yet with 23 participants, 4 of which were children and 2 of which were dogs.  It rained so it was a good turnout of my 31 people registered.  I met my fund raising goal of $1,500.  The highest amount I’ve raised in all 4 years too.

goal met!

My ASD (Autistic Spectrum Disorder) Evaluation  is set for May 24th so we’ll see what happens I also have an appointment with the therapist that day and it’s a week after school ended.  Me and my case manager have decided to go to meetings once every two weeks because I’m doing good but that might chance with the loss of structure from summer and some realizations I had when talking with some Autistic friends.  I’m set to receive to more AAs this semester, Associate Degrees or 2 years degrees one in Foreign Languages and the other in LGBT studies (Lesbian, Gay, Bisexual and Transgender).  I’m not going to either commencement ceremony but for my LGBT studies one I am going to a more informal Rainbow Graduation and 20 somethings friend is going.  I only invited 3 people, my sister and family friend couldn’t go both are traveling.

I signed my commitment thing to go to UC Davis and will be going to their transfer day this Friday and touring student housing and making my decision when I get home I plan on filling out the forms and putting my deposit down for student housing.  My financial aid finally went through and I’m relieved I won’t be paying that much for college so if my unpredictable parents do something stupid I’m still okay.

Things are good but I’m exhausted from yesterday.

Hope

27 Apr


This is a picture of my team shirt for the NAMI Walk this year. I have the green mental illness awareness ribbon with hope written inside. I’m finally seeing a lot of hope in my life. Over a year and a half without a hospitalization. Transferring to UC Davis in the fall and moving out. Getting accepted to all the other colleges I applied to was validation and definitely help my self esteem. I’m growing up and seeing a future. There is hope. 

Triggering

4 Apr

I think I pegged what is triggering these hypomanic episodes: the stress of trying to organize the social event of the NAMI Walk, along with the on going unknown of the ASD evaluation plus the grief of not being able to attend San Diego State University and it’s nearing the end of the semester.  That’s enough to drive anyone crazy, right?