Tag Archives: Aspergers

Adults on the Autistic Spectrum

2 Feb

It’s been one of those days, one of those weeks.  Where I’m frustrated that I don’t have an ASD diagnosis because I didn’t fit the criteria as a kid.  It’s been fucking with my functioning this week.  I’ve messed up a few social cues.  And I’m curious.  I have some Aspergers followers out there or people on the Spectrum that “cope” and appear normal enough.  I don’t mean this to come off rude, I know they took aspergers out of the DSM5 thats why I want to cover aspergers and the spectrum but I’m mostly referring to more of the higher functioning people who for lack of a better word pass as normal most time.

That’s me.  And I know the goal after you get an ASD diagnosis is therapy to help cope with daily living and be able to live productively, get social skills, don’t have meltdowns, learn to deal with sensory issues, etc. etc.   I just don’t understand that if I was forced to do this as a kid because of a chaotic home environment how I can’t have the diagnosis.  I essentially learned most the skills they try to teach out of necessity.  Now on my own, I’ve regressed a bit plus I’m managing a bunch of other shit so honestly I don’t have the energy for all that normative passing stuff.  But I’m still upset that the doctor won’t give me the diagnosis because as a child I didn’t meet the criteria till i was 11 or so.

 

Thoughts?

All over the place

30 Jun

My mood has kinda been all over the place lately and mostly reliant on other people or me level of boredom.  Which isn’t healthy.  Sometimes it’s not.  I’m kinda excited about starting summer school and the whole transition of moving out and transferring to UC Davis, but I try not to think about it to much because I don’t want to get overwhelmed.  Since I’m only taking one class this summer and it doesn’t start till August 1st, I was thinking about delving into some help type things I’ve been avoiding like maybe looking into talking about gender identity (though it isn’t bothering me too much right now) or looking into ACOA groups, again it’s not bothering me too much.  I guess things don’t have to be really difficult at the time to bother you, if you still know they are an issue.  I know when school starts up, it will be too crazy.  I’m interested to see what this ASD eval has to say.  I was talking to 20 something friend today about relationships and meeting people and how I don’t have skills and sometimes no interest and he was talking about like an ASD group or something.  I don’t know if that exists and technically I don’t know if I have a diagnosis or will.  I know in the past from being friends with others with BPD it was a mistake and caused a lot of drama.  I know I was trying not to look up info on ASD until I heard from the doctors, but I wanted to know what the new DSM5 had to say about it as I heard they were doing away with Aspergers and that’s most likely what I think I would be diagnosed with.  I was not surprised to find I met most the criteria but then that it said it had to be ruled out for schizophrenia, so I wonder if they will roll all the “social functioning” issues I have under the schizo in schizoaffective and then have the sensory issues in the Sensory Processing Disorder and just kind of ignore the other weird quirks like delayed sexuality, poor motor skills, my fixations, routines and problems with change.  So many questions and probably few will get answered.

Going into overwhelm mode

5 Mar

Time to write. Today has been a chill day. I think I may be getting sick. The weather is icky and my sister is stuck cleaning so no walk today. I’ve spent most the day sleeping, in bed, or in the bath. I did a SMASH page on getting accepted to San Diego State University. Because of all the lounging around its been hard not to get stuck in my head. 20 somethings friend and I are suppose to study tonight instead of Sunday night because he has something else he wants to do Sunday night. I should be studying now. I have my sociology midterm Thusday. I just won’t until my friend comes over and there is the reason/pressure to. I was thinking today about  how I use to wonder if I was an Aspie. I guess now I’ll find out. It’s hard for me not to google symptoms and just try to self diagnosis but for this I want a real accurate so I’m trying to stay away. I looked at San Diego State’s website quite a bit this morning; housing, my majors, campus life, disability services, tuition. I’m running out of things to do to keep my brain occupied, maybe I’ll have to start my studying/hmwk early.

Med and general update

29 Oct

I’m having a little more energy but the depression is lingering. My inpatient psychiatrist was sort of perplexed with what to do with me, he sees me as running out of options too. Which only good side is that it isn’t just my regular psychiatrist that thinks this. He added two new Meds, ones suppose to help with energy it is or I’m just a little more energy after resting in the hospital. My psychiatrist will probably take me off the new Meds, but sometimes he surprises me. I guess we’ll see. Right now I’m just trying to keep going despite the depression and allowing myself to rest but not too much. That’s always hard… I want to go go go go go or lay in bed all day. Today was counseling interesting. We talked about the sensory disorder and she mentioned something about Aspergers. She thinks a lot of issues are from my moms drinking problem. I don’t know cuz I have few memories and no real emotional connection to it. I’ll have to think about it some more I guess.

My thoughts on the DSM 5

7 Jun

There has been a lot of controversy last month about the release of the DSM 5, which is a manual that is used in the US to diagnose mental disorders and code them for insurance coverage.  The terms you hear like OCD, Bipolar Disorder, Autism, Schizophrenia, etc are found in this manual with criteria that must be met, background information, and other important information about the disorder.  The 5 in the DSM 5, means this is the 5th Edition (more or less, there was a DSM IV TR which was a Text Revision.)  And the DSM stands for Diagnostic and Statistical Manual of Mental Disorder.  The first edition was publish in 1952 and the last publication before this new edition was in 2000.  There has been a lot of things that have changed since 1952 in regards to recognizing and treating disorders, classifying disorders in similar “families” like Major Depressive Disorder, Dysthymic Disorder, Bipolar Disorder, and Cyclothymic Disorder which fall into the Mood Disorder category or family.  Changes in how disorders are named such as Manic Depressive Disorder which is now Bipolar Disorder and Aspergers Syndrome which is now an Autistic Spectrum Disorder.  The removal of disorders when culture and society changes, examples are Homosexuality and Gender Identity Disorder (if you considered yourself transgender, you could have been diagnosed with this.)  The number of disorders has also changed as things have been removed and other disorders added, much more being added.  Another reason for the increase in disorders is the fact that some disorders that professionals have found to be prevalent in the population which were before thought of as under an umbrella diagnosis; an example of this is the new skin picking disorder and hoarding which were formerly thought of as sub types or symptoms under Obsessive Compulsive Disorders.  So now that you have a little history on the DSM and how and why they make changes I will explain what I think of some of the new changes both ones that are controversial and others which may have not gotten as much press.

One of the biggest stories was when Thomas Insel, the director of the National Institute of Mental Health (NIMH) publicly stated that their orginization would no longer be using the DSM for their research methods.  He went on to say:

Patients with mental disorders deserve better. But what exactly is better? What alternative do we have to categorizing patients according to their symptoms? Where are the hard data, the blood test, the biopsy, the EKG for diagnosing troubles of the mind?

Insel wants the government funded agency to instead focus on symptoms that may be part of different disorders rather than specific diagnosis and a focus on evidence based tests.  For example, allowing people with depressive symptoms that may be diagnosed with different diagnosis (example: Major Depressive Disorder or Bipolar Disorder) to participate in the same research studies in hopes to find brain based research that ties to the symptom of depression.  With this hypothetical new knowledge, researchers believe they could make better medications that could target specific symptoms; and maybe even later see (as in brain imaging or gene sequencing, etc) differences between agitated depression and say catatonic depression to make specific medications for those symptoms.

My response to this is:  That I think this idea is great in theory but that we haven’t made any head way in it in the past.  I think we should definitely try to find evidence based tests that can help us recognize symptoms and disorders and help with effective treatment. However, I think we aren’t there yet and to change the entire focus on to biological research of specific symptoms is just not possible at this time.  In my opinion they should spend some time researching based solely on symptoms, some time on disorders as they are classified now, and other time figuring out how and why the treatments that do work work.  I also believe that him being in such a public figure and some would assume spokesperson for the NIMH that he would be careful what his opinion is and how the words he says may be taken.

An excerpt from an interview with NPR:

FLATOW: Well, what is your problem? Tell us what your problem – why you’ve decided to not use that book so much.

INSEL: We’re not saying that clinicians shouldn’t use it. One way to think about this is DSM is really what we have, along with ICD, but those are really for the bedside. And I’m talking to an audience in the biomedical research community that’s at the bench, not at the bedside, most of the time.

And so, for the bench, we’re looking for some way to do just what Jeff Lieberman said a moment ago: finding a way to deconstruct these classifiers and to say hey, yes this is what we currently call schizophrenia. This is what we currently call autism spectrum disorder, but perhaps that’s not one problem, but multiple, five, six, seven, eight different diseases that are contributing.

Let’s do the science without the presumption that it’s a single disease. Let’s do the science with the assumption that we have to actually pull this apart and begin to understand the subtypes if we’re going to get to more selective treatments

Which kind of reinforces my point of being careful with his words, because he is specifying here he meant it just not be used by researchers but as you can tell people assume he means everyone even mental health professionals. Also another reason I am in favor of the DSM is that it puts common names to groups of symptoms that lead to some understanding, though obviously not perfect.  If my therapist, case manager, psychiatrist, and primary care physician are talking and here the term Borderline Personality Disorder or Depression they have a general idea and understanding.  Also, hearing a diagnosis helps your problems seem real and meeting others with similar disorders can create a sense of community and support- things like this happen daily at support groups for things like OCD, addictive behaviors, and even non-specific diagnosis, but symptoms like codependency, grief, or specific stressers.

 

The removal of Aspergers Syndrome from the DSM where there are now Autistic Spectrum Disorders.  With this topic I go both ways in some regards.  Aspergers Syndrome is commonly refereed to a less severe version of Autism or high-functioning Autism in some cases, I don’t like this and never have.  When you say your child has high-functioning Autism you are implying that most Autism is low-functioning- I think with the symptoms that would normally classify you for a diagnosis of Aspergers Syndrome now falling on the Autistic Spectrum many more people will use terms like high-functioning and low-functioning to determine where the person falls on the spectrum.  I prefer terms in severity, duration, and intensity that have less stigma attached to it.

 

Another big issue the change in grief or bereavement in the diagnosis of Major Depressive Disorder.  Prior to the DSM 5 bereavement was an excluding factor, meaning that if you had the symptoms of Major Depressive Disorder for 2 weeks or more you could not meet the criteria on a bereavement exclusion.  There are a couple things that could over ride this that I didn’t learn about until reading this from a post on World of Psychology:

An exception could be made only in certain cases; for example, if the patient were psychotic, suicidal, or severely impaired

I think allowing bereavement to be added is a positive step.  I believe some people who may have a predisposition to Depression may get their illness triggered by a loss, in a similar way drug use can trigger schizophrenia in people who are predisposed.  Also bereavement affects everyone different, you can tell by the quote above some reactions that can happen.  Also many people need therapy services when dealing with the loss of a loved one and just because you get a Depression diagnosis doesn’t mean you have to take medication it could get you eligible for counseling services that may not be covered unless you have a diagnosis.

I am happy about the removal of Gender Identity Disorder from the manual this year and think it’s a great step for the LGBT community, especially youth who are more susceptible to be diagnosed and treated for this disorder.

I approve of gambling being added into the section on Addictive Disorders, I have seen first hand the damage a gambling addiction can have on people and am glad with the addition people more people will be treated and covered my insurance.  Some people fear with this inclusion of an addiction being based on a behavior that eventually other behaviors will be added like internet addiction or video game addiction- I am not sure if this will happen or not but people should focus on the now rather than speculating about the future.  If the internet or video gaming becomes a prevalent and disabling addiction that it may be added at a latter point and I think both those descriptions can apply to gambling addiction.

I have talked in a prior post about my views on the addition of Disruptive Mood Dysregulation Disorder (DMDD) to stop or redirect childhood bipolar diagnosis, I also talk about the personality disorders not being changed at this time and a little about the changes in the Autistic Spectrum.

DSM 5 Has been Approved

1 Dec

Today the DSM 5 has been approved and will be published sometime in May of 2013.  There have been a couple controversial items being discussed with the new updated DSM- 5, which is used in the US to diagnose mental disorders.  Some of the interesting information just released in a statement by the APA are as follows:

Autism spectrum disorder: The criteria will incorporate several diagnoses from DSM-IV including autistic disorder, Asperger’s disorder, childhood disintegrative disorder, and pervasive developmental disorder (not otherwise specified), into the diagnosis of autism spectrum disorder for DSM-5 to help more accurately and consistently diagnose children with autism.

This refers to the controversy of the diagnosis of Asperger’s also know as “High functioning autism” which will now be dropped from the new DSM 5.  However it is said that individuals who met criteria for Asperger’s will fit criteria on the Autistic Spectrum Disorder.  The APA is also saying this new umbrella diagnosis will help individuals get services that weren’t always available in some states due to the diagnosis of Asperger’s over Autism.

Disruptive mood dysregulation disorder will be included in DSM-5 to diagnose children who exhibit persistent irritability and frequent episodes of behavior outbursts three or more times a week for more than a year. The diagnosis is intended to address concerns about potential over-diagnosis and overtreatment of bipolar disorder in children.

DMDD, Disruptive mood dysregulation disorder, has been criticized since some people believe that children experiencing “tantrums” which many people believe are a normal stage of development will be incorrectly diagnosed and possibly medicated.  There hasn’t been any information I’ve seen on how DMDD will be treated but one reason for it as stated above is because of the possible over-diagnosis and over treatment of childhood bipolar disorder, which is primary treated with medication.  Some people think kids are being over diagnosed and therefore over medicated and hope this new diagnosis will prevent that.

Personality disorders: DSM-5 will maintain the categorical model and criteria for the 10 personality disorders included in DSM-IV and will include the new trait-specific methodology in a separate area of Section 3 to encourage further study how this could be used to diagnose personality disorders in clinical practice.

There has also been a lot of talk about changing the personality disorders.  One proposed change was the naming of Borderline Personality Disorder to emotion dysregulation disorder which did not happen.  Another proposed change was the “trait- specific methodology” mentioned above.  This was the splitting of criteria into main categories and then having specifics under the categories.  These specifics would sometimes meet criteria for different disorders and would be rated on a number scale indicating severity.  This was meant to help professionals recognize the specific traits in disorders which may need more attention for treatment.  An example is borderline personality disorder, which has 9 different criteria therefore many different ways of presenting itself in individuals.  The proposed system would show that one individual may deal with impulsivity more than the other criteria when another may not even meet that specific criteria.  The trait specific stuff will be in Section 3, so it can be studied to be possibly included in the next update.

NAMI article on the DSM-5

7 Aug

This is an article from NAMI (National Alliance for the Mentally Ill) about revisions to the DSM (Diagnostic Statistical Manual of Mental Disorders) meaning the book that contains the criteria to diagnose certain disorders.  The article has some interesting points I’ll name here and the link at the bottom for further reference if interested.

  • The new manual will do away with the axis system, and instead be groped by 20 similarly typed disorders.  I think this is good, the other day I was trying to explain the axis system to my sister and she couldn’t get it and it was hard to explain.  Also interestingly my current diagnosis Schizoaffective Disorder would fall into the category Schizophrenia and psychotic spectrum disorders.
  • Another change (and contraversioal) is the elimination of Aspergers and it to be placed into Autistic Spectrum Disorder.  This may resort in fewer diagnosis the article also mentions.
  • Another change will be to the personality disorder category eliminating Schizoid, Paranoid, Histrionic and Dependent personality disorder.  this is their reasoning:  “Researchers feel that people in these categories rarely needed professional help and that many of their symptoms could be better described by the remaining personality disorders”

And for the link:  http://www.nami.org/template.cfm?Section=Top_Story&template=%2FContentManagement%2FContentDisplay.cfm&ContentID=143240&lstid=809