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MIAW 2017

1 Oct

Today’s the first day of Mental Illness Awareness Week.  I posted a quick thing on one of my FB pages and should probably on my older more popular one, but we’ll see.  It was the juvenile diabetes walk today so I saw high school friend and that crowd.  I was talking with one friend out of that crowd about what specifically schizoaffective disorder is and what makes is different from schizophrenia and what makes it different from mood disorders.  She also asked me how I was doing since I transferred to the university and I was honest about the couple of psychotic episodes, but not enough to get hospitalized we just managed with increasing medication.  It’s refreshing being able to be so open now and not feeling like I have to hide what is such a big part of my life.

And then at ice cream later with some planner friends, I mentioned being exempt from jury duty for life.  I wasn’t as comfortable as saying my psychiatrist wrote the note, but that a note had written every year since I was eligible and he keeps writing me out and now exerted me for life.

Update 9/7/17

7 Sep

Things have been so -so the last week, before that it was chaos.  The back 2s (voices) came back for a go.  I was having flashback symptoms.  Bad dreams.  And mood swings like nothing.

I’m still having bad dreams but their not trans related more abandonment related and BPD stuff.  My mood has stabilized out and my case manager is probably right it was missing my hormones for 2 days (4 doses).  The flashbacks are less frequent but there still there.  The other night it was bad enough I had to take my bracelets and fitbit off.  The voices subsided, not sure why or what not but I’m just glad.

20 somethings friend is coming to visit in less than a week so I’m excited about that.  It turns out with my fall schedule I can still help babysit my nephew on Mondays like I’ve been doing this summer, so I’m excited about that.

GRE bootcamp has started and it’s a lot of work.  I’m now glad I have a 1/2 day tomorrow because I have an appointment with my case manager.  Next week I’ll be taking a friend from gender group to SF for an appt so I’ll do a 1/2 day or take the full day off, so looking forward to another break again.

Medicine

7 Aug

It’s interesting well scary kinda… I can skip three doses and I feel myself start floating away.  Like sanity is slowly slipping away.  I’m an adult and I can make my own choices and because of some dumb inconveniences I decided to stay at my parents which meant I didn’t have my meds.  As I was driving back to my house this morning I’m frantic to write down all this important stuff that I can no longer remember (probably cuz the meds are already kicking in) because some aliens are going to delete the information from my brain and call it alziheimers because that’s what they’ve been doing to everything.  I get stuck on some PTSD stuff from the past and I want to write on it, but I don’t want to focus and get stuck there.  My mind is everywhere.  I’m posting on Facebook, Facebook messaging people and have all this shit going on in my head when I nearly get in a car accident.  And the only thing I think, gladly going somewhere near back into reality is their going to read my post about needing my meds and this is going to be all my fault.  Not how fast I was going, or that I would have been really hurt or hurt someone else.

 

Does anyone else feel themselves slip away as they don’t take meds?  I mean I could go with it, but I don’t really like myself in that place it’s too messy.

It’s time for an update

4 Apr

A lot has gone on since the last update.  I have decided to change from identifying as gender variant to gender queer, as I learn more about the community and more about what terms mean I learn more where I fit.  Since my sexuality is no where near heterosexual and is shifting with my gender identity as well as still staying somewhat on the asexual spectrum, I decided to go with gender queer.   I talked to the therapist yesterday AGAIN about being referred to the gender specialist and I think it’s finally going to happen!  At least she thinks I’m stable enough.  I’m not going to mention the last bout with the voices to the therapist or my case manager for a couple weeks, just in case.

I plan on getting my hair cut to look more masculine and also because it gets super hot here in California in the summer, and it’s already starting to warm up.  My roommates don’t keep the apartment as cool as my parents kept the house and next year it will be harder as we will be paying utilities.  I know people will have a problem with my hair cut, but I hope they will adjust.

I got accepted to go to T-Camp which is a retreat for people under the Trans umbrella at colleges in northern California; it’s two days and coming up next weekend.  I’m not sure what to expect but I’m excited I got accepted.

I’m also starting NAMI’s Peer to Peer class in mid April and I’ve been trying to get into that for like 2 years.  It’s either been in the wrong county or interfered with my school schedule.  It’s 10 sessions, twice a week.

So lots of exciting things coming up!

Protected: Voices and triggers

28 Mar

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A needed update

11 Jan

Things are going well.  I’m into my 3rd day of the new quarter here in college.  I already like it much better than last quarter.  Taking more classes I thrive as the structure helps keep me accountable and busy- last semester there was just too much down time.  I bought a binder to begin wearing this year, when it came in the mail and I saw it I was like “Yikes!” it looked so small, especially around the stomach area.  I’ve been wearing it for 4 days now; usually only the first half the day while I’m in my classes.  There is some discomfort when walking and I can’t slouch, which may be a good thing.  But I really like the way I look.  I want to buy a few more, as I just bought one since they are sort of expensive and I wasn’t sure how I’d take to it.  The thing is it’s really hot, which is fine in this rainy wet weather we are having now, but what happens once hot summers come?  I also found new boxer briefs that don’t ride up and practically become like woman underwear.  I bought 4 more mens shirts and my dad just gave me some more money for the month.  I think I’ll buy another couple shirts.

 

My classes this semester are 2nd quarter Greek, 4th quarter Spanish, New Testament in Greek, Upper Division Writing, and Gender, Language and Society.  There are 5 classes but the New Testament class is just one hour, once a week.  I also have an ungraded connection that meets once a week around the common interest of being a Future grad student.  I’ll be pretty busy this quarter.

Counseling will probably be cut to every other week so I can go to gender group, also because I’m doing well right now.  If I start to have problems we may change apps to Friday or I may go later on Wednesdays and skip Gender group sometimes.  When I see the therapist at the end of the month I’m going to ask her AGAIN about when I will have a consult with the gender therapist, I know I was in crisis in November and then in December she had to cancel because she was sick but I’m running out of patience.  I just found out today my psychiatrist has a reminder set to have a phone appointment with me on the 20th, then we will talk about reducing the Latuda we had to increase at the end of November because of the psychotic symptoms.

Doing much better

30 Nov

Sine the increase of the Latuda I have been doing much better.  I’m still feeling the increase effects, so mind slow and sleepy so I am overcompensating with caffeine (Red Bull and Starbucks) unfortunately the increase had to be made the week before finals, but hey what can you do.  Probably in a week or two my body will just and I’ll no longer feel the mind slow or extra sleepiness and be able to lay off the extra caffeine, plus school will be out so not much will be going on anyways.

I’m worried about going back home for break.  Less structure usually means worsening of depression symptoms.  Being home means less experimenting with/exploring gender identity.  But there is more people looking at me, so I doubt I can stay too inactive and let myself fall apart too much.  I just don’t want to un-grow.

I haven’t needed the extra DBT skills since the Latuda increase, but have a feeling I’ll need them when I’m home on break.  I’ll still have my apartment so maybe some time I will come here to get away.  I hope to get off the extra Latuda by the end of January, but that may not be realistic- we’ll see once school starts up.

I attended a thing on different types of attraction yesterday that the LGBTQIA center put on yesterday for Asexual Awareness Day.  I’m trying to figure out things and for now I’m thinking gay grey A and biromantic.  I’m not sure how it will fit in with my gender identity and all that but for the most part I’m more attracted to women.  And I still identify more as woman if you make me chose a binary, but gender variant under the trans* umbrella otherwise.

Call from psychiatrist

22 Nov

Just got off the phone from my psychiatrist and it’s just what I needed.  I had no intent to go to classes today.  I couldn’t sleep again last night with the voices and the paranoia and when the thoughts started to turn to sleeping under the bed to hide “just in case” I got out of bed and took some extra PRN Latuda and Valium.  This helped me get to sleep, but unfortunately I woke up with nightmares that Trump had declared war and drafted all the men to go to war.  When I got up to go to class I managed to take a shower.  I really needed one, since Monday I just wore a snow hat and pajamas to school.  However, that put me over the edge and once dressed for school I became fearful and crawled back into bed.  I set my alarm for my 2nd class but near time to attend, turned it off and resent it for a trans clothing fair I hope to go to.  My psychiatrist called and we are upping my antipsychotic Latuda by 1/2 which is what I have PRNing on a regular basis until I feel less vulnerable and more confident in DBT skills.  He wants me to not associate taking a pill with the behavior which is fine, as long as I have some medical relief.  I will also be using my coping skills I use- mostly DBT to deal with what voices, paranoia, and distress break through.  And yes some always break through.  Medication is no cure.  During thanksgiving break I’ll go through my packets and go over some skills. My psychiatrist wasn’t me to set up a phone session with the therapist to go over how DBT skills are working with this stuff.  So far I have the music skills I’ve been using and rationalizing.  It’s been 2 years without voices so I need to re-look through my skills.

Safety plans in place

20 Nov

Safety plans in place, and I guess I got my psychiatrist all worried.  So I saw my case manager on Friday and told her legit what was going on, and also that I was NOT going to go to the hospital.  I told her I told the therapist what was going on but not how bad it was, because she doesn’t know me as well and probably would’ve hospitalized me based on my symptoms.  I wrote my psychiatrist a message earlier in the week about my symptoms and he talked to my case manager and the therapist and he’s all freaked out and made an appointment for me next Friday.  My case manager was talking about how he was invested in me and worried, lol.  I think he’s just frustrated we found some meds that finally worked and now they’re now working again.  My sister is holding on to my extra pills, so I don’t have them at my apartment- I’ve been extra suicidal so that’s part of me trying to be safe.  I also put a Trans crisis line in my cell phone.  My case manager reminded me she’ll be off this week for thanksgiving, but to feel free and call for an emergency appointment the next week and she’ll get me in.  Although I gave my sister the extra pills, I put in my chart some extra PRN of Latuda (my anti-psychotic) and Valium in case the voices get to bad and I need to calm down.  Just 3 more weeks of school to get through.  Then 5 weeks of vacation, and I don’t care if I have to go to the hospital then- I mean I prefer not to but it’s a hell of a lot better than missing finals.  Hopefully during winter break the symptoms let up, or I can adjust.

Just another “Election aftermath”

10 Nov

I live in California a pretty democratic progressive state, everyone was outraged, sad, angry, pissed, scared, and a variety of other bad feeling when Trump won- well most everybody.  My dad would have voted for him if he was in the states.  Everyone who lived in my court voted for him and I knew others that did.  I was sad and scared, but mostly shocked, it took awhile for the real feelings to kick in.

 

I’m 33, 34 in two days.  I’ve waited a long time to start transitioning.  I haven’t felt safe to do it in my own home.  Now I don’t feel safe to do it in my country and worry about government policies and procedures that may prevent me from doing so.  I already know it won’t go quick as I like because of my pre-existing mental health conditions; especially the episode a couple weeks ago with the voices.  Now I feel set back, hopeless, suicidal.  I wonder if I should abandon myself, my progress of the last few months with transitioning and the last 5 years of so with accepting my sexuality.  I don’t want to be unsafe but at the same time I want to die.  But I’d rather have it be by my own hand than some hateful bigot.